This is an officially certified Patients Included conference.

 

The following people participated in organizing the conference:

 

Organizing Committee

 

  • France Légaré, MD, PhD; professor, Université Laval, Canada
  • Gary Groot, MD, PhD; professor, University of Saskatchewan, Canada
  • Patrick Archambault, MD, MSc; professor, Université Laval, Canada
  • Anik Giguère, PhD; professor, Université Laval, Canada
  • Sabrina Guay-Bélanger, PhD; research coordinator, Université Laval, Canada
  • Carole Guérin; Vice-décanat à la pédagogie et au développement professionnel continu, Université Laval, Canada
  • Pascale Rowley; Vice-décanat à la pédagogie et au développement professionnel continu, Université Laval, Canada
  • Patient representative to be identified

 

Scientific Committee

 

  • Dawn Stacey, RN, PhD; professor, University of Ottawa, Canada
  • Nick Bansback, PhD; associate professor, University of British Columbia, Canada
  • Claire Ludwig; patient representative, Ottawa, Canada
  • Karen R. Sepucha, PhD; associate professor, Harvard Medical School, United States
  • Simone Kienlin, PhD(c); doctoral student, University Hospital of North Norway, Norway
  • Sascha Köpke, PhD; professor, University of Lübeck, Germany
  • Heather Shepherd, RN, Dip HE, PhD; research fellow, University of Sydney, Australia
  • Mirjam Marjolein Garvelink, PhD; postdoctoral fellow, St. Antonius Ziekenhuis, Netherlands
  • CJ Ng, MD, PhD; professor, University of Malaya, Malaysia
  • Hilary Bekker, PhD; professor, University of Leeds, United Kingdom

 

International Committee

 

  • Anik Giguère, PhD; professor, Université Laval, Canada
  • Mame-Awa Ndiaye, patient representative, Quebec City, Canada
  • Nora Feradjaoui Moumjid, PhD; lecturer, Université Claude Bernard Lyon 1, France
  • Glyn Elwyn, MD, PhD; professor, The Dartmouth Institute, United Stated
  • Michael J. Barry, MD; professor, Harvard Medical School, United Stated
  • Annette O'Connor, RN, PhD; emeritus professor, University of Ottawa, Canada
  • Angela Coulter, PhD; senior research scientist, University of Oxford, United Kingdom
  • Trudy van der Weijden, MD, PhD; professor, Maastricht University, Netherlands
  • Renata Oliveira Maciel dos Santos, Nurse, PhD; Instituto Nacional de Câncer, Brazil
  • Albert G. Mulley Jr., MD, MPP; professor, The Dartmouth Institute, United States
  • Paulina Bravo, PhD; professor, Pontifical Catholic University of Chile, Chile
  • Danielle Muscat, PhD; postdoctoral fellow, University of Sydney, Australia
  • Yew Kong Lee, PhD, lecturer, University of Malaya, Malaysia
  • Bruno Boidin, PhD; professor, Université de Lille 1, France
  • Karina Dahl Steffensen, MD, PhD; professor, Lillebaelt Sygehus, Vejle, Denmark
  • Hsun-Hsiang Liao, National Taiwan University, Taipei, Taiwan

 

Patients Included


As patients are at the centre of our priorities, we are proud to announce that the 10th International Shared Decision-Making Conference will be a certified Patients Included event, attesting to our commitment to include the experiences and insight of patients as the experts in their own health conditions. We will ensure that patients will not be either exploited or excluded during the conference.

 

For more information on the program, please see the Patients Included website.

 

To achieve Patients Included status, an organization must meet all five criteria of the Patients Included Charter. They are listed below, along with the measures taken to meet them.

 

 

1. Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers.

 

Patient partners are present on all conference committees (organizing, scientific and international) and participate actively in all their decisions. They are involved in selecting speakers, the call for abstracts and the selection of presentations submitted, so that the conference program reflects the diversity and reach of current shared decision making research. They will also advise on best practices for engaging patient partners in the conference.

 

 

2. Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience.

 

Patients will make presentations both in plenary and panel sessions, in which they will have the opportunity to share their experiences and involvement in different research projects, as well as the concrete benefits observed.They may also moderate other sessions. Patients are invited to attend the conference as audience, participate in sessions and ask questions during question periods.

 

 

3. Travel and accommodation expenses for patients or carers participating in the advertised programme are paid in full, in advance. Scholarships are provided by the conference organizers to allow patients or carers affected by the relevant issues to attend as delegates.

 

There will be a reduced registration fee for patient participants. The organization will offer as many scholarships for patient participants as possible within our budget. These scholarships will cover registration, travel, accommodation and meals, which will be entirely reimbursed. Details about applying for scholarships will be available shortly.

 

 

4. The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other programme elements are open to patient delegates.

 

The Conference will take place at Université Laval campus, at the Ferdinand-Vandry and Alexandre-Vachon Buildings. These are equipped with elevators, access ramps, automatic doors and toilets designed to meet the needs of people with disabilities. For more information see the Guide d'accessibilité architecturale (French only) or contact us by email at ISDM2019@fmed.ulaval.ca to request assistance.

 

 

5. Access for virtual participants is facilitated, with free streaming video provided online wherever possible.

 

With permission from the speakers, plenary sessions will be filmed and uploaded to the internet after the conference. Links to the filmed presentations will be available on the conference website. The hashtag #isdm2019 will be used to virtually promote the event and share discussions. Scientific content and exchange can thus be discussed by people not able to attend in person.